What is it? Clinical Signs Causes DIAGNOSIS AND SUPPLEMENTARY EXAMINATIONS TREATMENT
Presentation Clinical Presentation Aetiology Imaging Treatments MCCUNE-ALBRIGHT SYNDROME
Congress Events Profidys Clinical Trial
Association des Malades Porteurs du Syndrome McCune-Albright ORPHANET : maladie rares & médicaments orphelins Fondation Fibrous Dysplasia European Science Fondation
Dysplasie fibreuse des os contact
EVENTS

29/04/2009: A day for reference centre and competence centres for fibrous dysplasia of bone at Necker Hospital.

 Meeting programme

 

06/02/2008: The site www.dysplasie-fibreuse-des-os.info is certified by the foundation Health On the Net, in collaboration with the High Authority for Health, according to law n° 2004-810 of the 13 August 2004.

 

26/06/2007: Regional centres of competence are in the process of being created. They will limit the need to move patiens for monitoring and treatment. This network will be approved by the Ministry for Health in the autumn. 

 

 


 

 

Created: 09 june 2010